Publications by authors named "Brenda A Senger"
Unlabelled: Mitochondrial disease comprises a group of rare, genetic, life-limiting, neurodegenerative disorders known to affect children. Little is known about disease-related challenges, parental stress, and coping when caring for a child with a mitochondrial disease.
Purpose: This study explored disease-related characteristics and parental stressors and coping behaviors related to caring for a child with mitochondrial disease.
Unlabelled: Mitochondrial disease is a spectrum of progressive genetic disorders resulting from dysfunctions of cellular metabolism in the mitochondria that greatly compromise the lives of affected individuals, who are often children.
Purpose: This study described the parent experiences unique to caring for a child with mitochondrial disease.
Methods: Internet surveys were made available to parents of children with a known mitochondrial disease.