Publications by authors named "Birgitta Jakobsson Larsson"
Article Synopsis
- The study looked at what it's like for teenagers who have a parent with ALS, a serious illness that affects movement.
- Researchers talked to 11 young people in Sweden to learn how this situation made their lives difficult and emotional, especially when their parents became more disabled.
- The findings showed that these teenagers had to take on more responsibilities and felt sad and stressed, which could affect their growth and ability to become independent adults, highlighting the need for support for them.
Aim: To describe what registered nurses' experience to be important to job satisfaction in nursing home settings.
Design: This is a qualitative study based on data from individual interviews.
Methods: Sixteen registered nurses working in nursing homes were interviewed, and their responses were analysed with systematic text condensation.
Objects: The aim of this study was to describe the presence of anxiety and depression among patients with Amyotrophic Lateral Sclerosis (ALS) and their relatives from diagnosis and during the disease progression. An additional aim was to explore if the patient's physical function correlated with the patients' or relatives' anxiety and depression.
Methods: A prospective and longitudinal study, including 33 patients with ALS and their relatives who filled out the Hospital Anxiety and Depression Scale (HADS) at the time of diagnosis and over a period of two years.
Objectives: To describe levels of pain over time during disease progression in individual patients and for a total sample of patients with motor neuron disease (MND), respectively, and to examine associations between pain, disease severity, health-related quality of life (HRQOL), and depression.
Methods: A prospective cohort study was conducted on 68 patients with MND, including data collected on five occasions over a period of 2 years. Pain was assessed using the Brief Pain Inventory - Short Form.
Living with a parent with ALS - adolescents' need for professional support from the adolescents' and the parents' perspectives.
Amyotroph Lateral Scler Frontotemporal Degener
July 2023
Article Synopsis
- The study focused on understanding how teenagers feel about needing support when a parent has a serious illness called ALS.
- Researchers talked to 37 people from 18 families, including teens and their parents, to learn about their experiences.
- Both teens and parents agreed that support is important but hard to ask for; teens need help to handle life changes and should be included in discussions about their family situation.
Background: Up to 85% of people with motor neuron disease (MND) report pain, but whether pain has negative impact on quality of life is unclear. The aim was to study associations between pain, disease severity and individual quality of life (IQOL) in patients with MND.
Methods: In this cross sectional study, 61 patients were recruited from four multidisciplinary teams in Sweden, whereof 55 responded to the pain measure (The Brief Pain Inventory - Short form) and were included in the main analyses.
Objective: Relatives are often central in caring for patients with amyotrophic lateral sclerosis (ALS), involving considerable physical, emotional, and social challenges. The aim of this study was to describe individual quality of life (iQoL) among relatives of patients with ALS, from diagnosis through disease progression.
Method: A total of 31 relatives were included.
The aim was to explore personal experiences of pain in people with motor neuron disease. Sixteen participants were individually interviewed on one occasion concerning their experiences of presentation, consequences, and management of pain. Qualitative content analysis with researcher triangulation was used to synthesize and interpret data.
View Article and Find Full Text PDFTo evaluate coping strategies among patients with Amyotrophic lateral sclerosis starting with diagnosis and during the disease progression, as well as investigate changes and correlations between coping strategies, emotional well-being and physical function. A total of 36 patients participated in the study. The patients filled out the Hospital Anxiety and Depression Scale and the Motor Neuron Disease Coping Scale.
View Article and Find Full Text PDFObjective: The purpose of this study was to describe relatives' experience of patient care and the support they themselves received during the course of disease progression.
Method: A total of 15 relatives were included from two neurology clinics in Sweden: 7 wives, 4 husbands, and 4 daughters. Data were collected through qualitative interviews 6 to 12 months after the patient had died.
Aims And Objectives: To prospectively identify different coping strategies among newly diagnosed amyotrophic lateral sclerosis patients and whether they change over time and to determine whether physical function, psychological well-being, age and gender correlated with the use of different coping strategies.
Background: Amyotrophic lateral sclerosis is a fatal disease with impact on both physical function and psychological well-being. Different coping strategies are used to manage symptoms and disease progression, but knowledge about coping in newly diagnosed amyotrophic lateral sclerosis patients is scarce.