The theory of a co-creative process in advanced palliative home care nursing encounters: A qualitative deductive approach over time.

Aims And Objectives: The aim of this study was to test the theoretical conceptualization of the co-creative process in home care nursing encounters over time.

Method And Design: This was a multiple case study with a deductive analysis of qualitative data over time, using interviews and observations collected from three cases.

Results: The co-creative process was complex and contained main, sub- and micro-processes.

Adaptation and evaluation of the Family Involvement and Alienation Questionnaire for use in the care of older people, psychiatric care, palliative care and diabetes care.

Aim: To adapt the Family Involvement and Alienation Questionnaire (FIAQ) for use in the care of older people, psychiatric care, palliative care and diabetes care and to evaluate its validity and reliability.

Background: Involvement in the professional care has proven to be important for family members. However, they have described feelings of alienation in relation to how they experienced the professionals' approach.

Nurses' experience of the transfer of ICU patients to general wards: A great responsibility and a huge challenge.

Aims And Objectives: The aim of the study was to describe nurses' experiences of patients' transition from ICUs to general wards and their suggestions for improvements.

Background: In the ICU, the most seriously ill patients with life-threatening conditions and multiple organ dysfunction syndromes are cared for and carefully monitored by specially trained professionals using advanced techniques for the prevention of failure of vital functions. The transfer of ICU patients to general wards means a change from a high to a lower level, including the loss of one-to-one nursing and a reduction of visible monitoring equipment and general close attention.

Health-related quality of life--from the perspective of mothers and fathers of adult children suffering from long-term mental disorders.

There is a lack of studies on mothers' and fathers' experiences of Health-Related Quality of Life (HRQOL) associated with caregiving of adult children suffering from mental disorder. A cross-sectional study was therefore carried out with 108 mothers and 43 fathers. Data were collected by means of the Short Form Health Survey (SF-36), the Hospital Anxiety and Depression Scale (HADS), the Family Involvement and Alienation Questionnaire (FIAQ) and the Burden Assessment Scale (BAS).

Transitions in the communication experiences of tracheostomised patients in intensive care: a qualitative descriptive study.

Aims And Objectives: To describe how tracheostomised patients in intensive care experience acts of communication and to better understand their experiences in the context of the transitions theory.

Background: Waking up in an intensive care unit unable to speak because of mechanical ventilation can be challenging. Communication aids are available, but patients still report difficulties communicating.

"The unpredictable death"-The last year of life for patients with advanced COPD: Relatives' stories.

Objective: The end stage of chronic obstructive pulmonary disease (COPD) is described as prolonged, and the symptom burden for patients with COPD is often high. It progresses slowly over several years and can be punctuated by abrupt exacerbations that sometimes end in sudden death or a recovery of longer or shorter duration. This makes it difficult to identify the critical junctures in order to prognosticate the progress and time of death.

Parents' experiences of their premature infants' transportation from a university hospital NICU to the NICU at two local hospitals.

The aim of this study was to describe how the parents of premature infants experience the transportation of their baby from the neonatal intensive care unit at a university hospital (NICU-U) to such a unit at a local hospital (NICU-L). This descriptive qualitative study comprises interviews with nine sets of parents and two mothers. The qualitative content analysis resulted in one theme: living in uncertainty about whether the baby will survive, and three categories: being distanced from the baby; fearing that something would happen to the baby during transportation; and experiencing closeness to the baby.

Conceptions of mental health care--from the perspective of parents' of adult children suffering from mental illness.

The aim of this study was to describe parents' conceptions of the mental health care provided to adult children suffering from mental illness. Data were collected using qualitative research interviews with a purposive sample of sixteen mothers and ten fathers. Phenomenographic analysis was used to identify conceptions and formulate descriptive categories.

Family members' caregiving situations in palliative home care when sitting service is received: The understanding of multiple realities.

Objective: To deepen the understanding of the variation of complexity in family members' caregiving situations, when the private home is the place for care, dying, and sitting service.

Methods: Seven relatives to a deceased family member from four different families were interviewed twice. Data were analyzed by direct interpretation and categorical aggregation.

Co-creating possibilities for patients in palliative care to reach vital goals--a multiple case study of home-care nursing encounters.

The patient's home is a common setting for palliative care. This means that we need to understand current palliative care philosophy and how its goals can be realized in home-care nursing encounters (HCNEs) between the nurse, patient and patient's relatives. The existing research on this topic describes both a negative and a positive perspective.

Effects of a support group programme for patients with life-threatening illness during ongoing palliative care.

Background: Health care systems in many countries are moving towards outpatient care in which family members are central in providing care for patients with life-threatening illness. Several studies show that family members report a lack of preparation, knowledge and the ability to handle the caregiver role, and a need for information and psychosocial support.

Aim: The aim was to investigate the effects of a support group programme for family members of patients with life-threatening illness during ongoing palliative care.

Guilt and shame--a semantic concept analysis of two concepts related to palliative care.

Background: The theoretical viewpoint of the study was based on the fundamental motive in caring science, the suffering person and his/her health and life situation, which according to the philosophy of palliative care also includes the next of kin. The latter often wish to participate in the care of their loved ones and it is thus important for them to be able to make decisions that can generate a meaningful participation. Unfulfilled obligations or wrong decisions, concerning their dying relative, can result in experiences of guilt and shame in relation to the care of the loved one.

A lonely life journey bordered with struggle: being a sibling of an individual with psychosis.

Research suggests that siblings of individuals with severe mental illness are affected by the situation and that health care services seem to be inadequate in meeting their needs for support. The aim of this study is to explore how siblings of individuals with a psychotic illness, and who have participated in a support group, experience their situation. Thirteen individuals participated in focus group interviews, which were analyzed by inductive content analysis.

Identification and documentation of persons being in palliative phase regardless of age, diagnosis and places of care, and their use of a sitting service at the end of life.

Background: Older persons and persons with diseases other than cancer are often discriminated against when applying for palliative care despite growing numbers of both older persons and individuals with chronic diseases. An intention for palliative care in Sweden is that all persons in the final stage of life, irrespective of age, domicile, diagnosis, and care place shall have access to palliative care on equal terms. One way to support these persons in final stage of life and their relatives is to offer sitting service.

Fathers' everyday experiences of having an adult child who suffers from long-term mental illness.

The purpose of this study is to describe the everyday life experiences of fathers of adult children who have various forms of long-term mental illness. Ten fathers were interviewed. Content analysis revealed one main theme: Maintaining a strong façade while balancing on a thin line, and two sub-themes: (1) A constant struggle and (2) A feeling of powerlessness.

Shifting life rhythms: Couples' stories about living together when one spouse has advanced chronic obstructive pulmonary disease.

Aim: This study examines couples' experiences of living together when one partner has advanced chronic obstructive pulmonary disease (COPD).

Method: Repeated qualitative interviews with four couples over an eight-month period, where one spouse in each couple suffered from advanced COPD. The final dataset comprised 19 interviews.

Adaptation and psychometric evaluation of the Preparedness for Caregiving Scale, Caregiver Competence Scale and Rewards of Caregiving Scale in a sample of Swedish family members of patients with life-threatening illness.

Background: Family members often take on many caring responsibilities, with complex issues and challenges to consider. Feelings of preparedness, competence and reward are identified as concepts that may protect caregiver wellbeing and decrease negative outcomes related to caregiving.

Aim: This study aimed to translate, adapt and psychometrically evaluate the Preparedness for Caregiving Scale, Caregiver Competence Scale and Rewards of Caregiving Scale in Swedish family members of patients with life threatening illness.

Life is back to normal and yet not - partners' and patient's experiences of life of the first year after colorectal cancer surgery.

Aim: To describe the experience of life the first year after surgery from the perspective of persons treated for colorectal cancer and their partners.

Background: Colorectal cancer is a common cancer form, and treatment can cause unpleasant side effects such as sexual dysfunction and bowel problems. Partners struggle to keep family life normal and provide support.

Sharing living and dying: A balancing act between vulnerability and a sense of security. Enrolled nurses' experiences of working in the sitting service for dying patients at home.

Objective: To describe enrolled nurses' (ENs') experiences of working in a sitting service for dying patients at home (SSH).

Method: The ENs who participated in this study had permanent jobs in community care/ primary care, but were also employed part time in a special home-sitting service organization in a municipality in the south of Sweden. Data were collected by four focus group interviews with 17 enrolled nurses.

Meeting needs of family members of persons with life-threatening illness: a support group program during ongoing palliative care.

Objective: The aim of the study was to describe family members' experiences of content, structure, and approach of a potential intervention including a support group program for family members of persons with life-threatening illness.

Method: The study was a pilot project in a developmental phase in which a potential intervention, a support group program, was investigated. The design of the study was qualitative descriptive.

Nursing home residents' views on dying and death: nursing home employee's perspective.

Aim: To reveal nursing home employees' views on dying and death among older people they cared for.

Background: Palliative care stakeholders recently included more groups in their definition of palliative care; older people constitute one such group. Consequently, palliative care systems, which will serve a large, aging cohort, will require new skills.

Development of nurses' abilities to reflect on how to create good caring relationships with patients in palliative care: an action research approach.

Development of nurses' abilities to reflect on how to create good caring relationships with patients in palliative care: an action research approach In this paper we present an action research process aimed at enhancing nurses' abilities to reflect on how to create good caring relationships with patients in advanced home care. Another aim was to examine the usefulness of an emerging theory, derived from results from a previous study. The request for this project to take place came from an advanced home care unit which had received complaints concerning patients in the palliative phase.

Struggling to retain living space: patients' stories about living with advanced chronic obstructive pulmonary disease.

Aim: This paper is a report of a study of the experience of living with advanced chronic obstructive pulmonary disease and long-term oxygen therapy when living alone.

Background: Chronic obstructive pulmonary disease affects an increasing number of people. Breathlessness, fatigue and dejection are common symptoms during the last years of life.

Family members' satisfaction with critical care: a pilot study.

Aim: the aim of this pilot study was to describe family members' satisfaction with the care provided in a Swedish intensive care unit (ICU) based on the following needs: assurance, information, proximity, support, and comfort, which are all included in the Critical Care Family Satisfaction Survey (CCFSS).

Background: knowledge concerning satisfaction with care among family members with a critically ill relative in an ICU is important if the family is to be met professionally.

Design: the study design was descriptive and retrospective, with a consecutive selection of family members of critically ill people cared for in an ICU.