The many layers of social support: capturing the voices of young people with spina bifida and their parents.

Young people with physical disabilities experience greater difficulty than their able-bodied peers in many psychosocial domains as they transition toward adulthood. However, firsthand knowledge of the dimensions of social support that young people with physical disabilities find useful during this stage is lacking. This qualitative study involved 50 participants (21 youths with spina bifida and 29 parents) and focused on gaining an insider's perspective on the nature of social support.

Mothers raising children with sickle cell disease at the intersection of race, gender, and illness stigma.

This qualitative study used the long interview method with Canadian mothers of African and Caribbean descent to understand the underresearched experience of raising a child with sickle cell disease (SCD). Mothers' realities were explored through three levels of social organization: daily caregiver coping (micro level); community views of SCD, such as stigma (meso level); and systemic SCD health care provision (macro level). Through the use of population health and structural social work perspectives, mothers' experiences were examined in the context of perceived gender and racial oppression.

Using stimulant medication for children with ADHD: what do parents say? A brief report.

Introduction: Long-term adherence to stimulant treatment for Attention Deficit Hyperactivity Disorder (ADHD) is frequently poor. Since parents are the key decision makers regarding their child's health care, their thoughts regarding medication use are crucial to whether children take prescribed stimulants. To develop an understanding of what parents think about using stimulants to treat their children's ADHD symptoms we consulted groups of parents about their experiences.

Assessing the informational needs of adolescents with a genetic condition: what do they want to know?

Adolescence is a period of challenges that can be more stressful for someone with a genetic condition. The purpose of this descriptive pilot study was to assess the informational needs of adolescents with a genetic condition. To our knowledge, this is the first study that has attempted to identify these needs.

Factors associated with self-worth in young people with physical disabilities.

Having a positive sense of self is associated with success for children and adults, with and without disabilities. This article reports on a cross-sectional study examining the correlates of global self-worth for 85 young people (ages eight to 23) with spina bifida (a condition present at birth) or spinal cord injury (an acquired condition). Significant correlations were found between perceptions of self-worth and age, perceived social support of close friends, and perceived social support from parents.

Wearing masks in a pediatric hospital: developing practical guidelines.

During the outbreak of Severe Acute Respiratory Syndrome (SARS) in the spring of 2003, strict infection control measures were implemented in Toronto and surrounding hospitals. These measures included extreme restrictions on those who would normally accompany patients to the hospital, screening for SARS, and protective attire for hospital staff, including masks, face shields, goggles, gloves and gowns. At Toronto's Hospital for Sick Children (HSC), patients could only be accompanied or visited by one person, often only in patients' rooms.

Beyond individual rights and freedoms: metaethics in social work research.

Increasingly, social workers are called on to demonstrate the efficacy of their interventions and to contribute to knowledge building in the social sciences. Although social workers have a long tradition of practice ethics, less attention has been given to the unique dimensions of research ethics for social workers. A social work model of research ethics would consider how to balance highly valued ethical principles that are individually focused, such as self-determination and nonmalfeasance (the obligation to do no harm), with equally important values that have a collective focus, such as justice and beneficence (the obligation to bring about good).