Publications by authors named "Bethany Nicholson"
Article Synopsis
- Many children with inborn errors of immunity (IEI) need long-term care and effective transition to adult services to improve their health outcomes.
- A survey across Europe showed varying transition services for young people with IEI, with most centers starting the process around ages 16-18 and transferring care by ages 18-20.
- While many centers have defined transition processes, there is a lack of standardized national guidelines to ensure the best practices are followed during these transitions.
Background: Hematopoietic stem cell transplant (HSCT) is well established as a corrective treatment for many inborn errors of immunity (IEIs) presenting in childhood. Due to improved techniques, more transplants are undertaken and patients are living longer. However, long-term complications can significantly affect future health and quality of life.
View Article and Find Full Text PDFPurpose: Allogeneic hematopoietic stem cell transplant (HSCT) remains the treatment of choice for patients with inborn errors of immunity (IEI). There is little published medical outcome data assessing late medical complications following transition to adult care. We sought to document event-free survival (EFS) in transplanted IEI patients reaching adulthood and describe common late-onset medical complications and factors influencing EFS.
View Article and Find Full Text PDFBackground: Community health worker (CHW) programs are an important resource in the implementation of universal health coverage (UHC) in many low- and middle-income countries (LMICs). However, in countries with decentralized health systems like the Philippines, the quality and effectiveness of CHW programs may differ across settings due to variations in resource allocation and local politics. In the context of health system decentralization and the push toward UHC in the Philippines, the objective of this study was to explore how the experiences of CHWs across different settings were shaped by the governance and administration of CHW programs.
View Article and Find Full Text PDFBackground: Although previous correlational studies have shown that both symbolic and non-symbolic abilities relate to mathematical abilities, correlational studies cannot show the cause and effect of these abilities for mathematical success.
Aims: The current study examined the effect of a non-symbolic training program, called PLUS and a symbolic training program, called DIGIT, to provide further insight into the causal nature of domain specific factors that contribute to mathematical abilities.
Methods: and Procedures: Forty-nine preschool children who had low mathematical abilities were recruited and randomly allocated to the DIGIT and PLUS training programs.
Emotional and behavioral problems in children and adolescents with neurofibromatosis type 1.
Am J Med Genet B Neuropsychiatr Genet
April 2018
Article Synopsis
- A study evaluated emotional and behavioral issues in 183 children and adolescents with neurofibromatosis type 1 (NF1) using the Child Behavior Checklist (CBCL) from parents, the Teacher's Report Form (TRF) from teachers, and the Youth Self-Report (YSR) from the adolescents themselves.
- Parents reported that 32% of children scored in the clinical range for behavioral issues, while ratings from teachers and adolescents were significantly lower, indicating a discrepancy in perceptions of the children's problems.
- The study found that attentional issues were linked to factors such as lower verbal IQ, male gender, younger age, and ADHD-symptoms, while disease-related factors