Acceptability and use of a patient-held communication tool for people living with dementia: a longitudinal qualitative study.

Objectives: To assess the acceptability and use of a low-cost patient-held communication tool.

Design: Longitudinal qualitative interviews at three time points over 18 months and document content analysis.

Setting: Primary and community services.

PA10 What i need you to know. building a collaborative communication tool.

Background: During strategy consultation in Northern Ireland an "End of Life Care Passport" was suggested as a way to address myriad communication difficulties involved in living with evolving illness.

Aim: To build a patient-owned communication tool to facilitate important conversations and capture key information as health changes.

Methods: Participatory action methods used to engage service users, carers, patient advocates, and healthcare professionals.