Defining consensus norms for palliative care of people with intellectual disabilities in Europe, using Delphi methods: A White Paper from the European Association of Palliative Care.

Background: People with intellectual disabilities often present with unique challenges that make it more difficult to meet their palliative care needs.

Aim: To define consensus norms for palliative care of people with intellectual disabilities in Europe.

Design: Delphi study in four rounds: (1) a taskforce of 12 experts from seven European countries drafted the norms, based on available empirical knowledge and regional/national guidelines; (2) using an online survey, 34 experts from 18 European countries evaluated the draft norms, provided feedback and distributed the survey within their professional networks.