Influence of schooling on the health-related quality of life of children with rare diseases.

Background: Although participation of children with rare diseases in school is considered beneficial, it poses new challenges for the educational system, but also for the affected children and their families. The aim of this study is to identify which aspects of the schooling experience may have an impact on the health-related quality of life of children with rare diseases.

Method: A qualitative study was conducted using the social-critical paradigm as theoretical perspective.

[Needs of psychopedagogical training for the care of children with chronic disease: perceptions of hospital nursing].

Objective: To identify the psychopedagogical training needs of the pediatric nurses in the largest public hospital of the Balearic Islands, Spain.

Method: This study was developed with a quantitative and qualitative design, where 78 nurses (97.5% of the service) answered a questionnaire, and 15 participated in interviews that were analyzed via content analysis.