Background: Patients with chronic kidney disease and their families request early and continuous advance care planning. Based on user involvement, an advance care planning intervention was developed to support patients, family members and healthcare professionals (HCPs) in advance care planning conversations in a nephrology outpatient setting.
Objective: To explore the experiences and perceptions of an advance care planning intervention among patients with chronic kidney disease, family members and healthcare professionals.
Aim: To investigate dermatology and allergology nurses' experiences of relocation from an outpatient clinic to a newly established COVID-19 infectious disease ward.
Design: A phenomenological-hermeneutical approach was applied.
Methods: Three focus groups with nurses were conducted from June to August 2020.
Aim(s): To discuss the methodological aspects of participatory design, arguing for a three-phase approach and the suitability of situating participatory design within a phenomenological-hermeneutical tradition in health science.
Design And Methods: Methodological discussion based on participatory design theory, epistemology and research studies.
Results: The epistemological and methodological discussions show how the core values and key elements of participatory design align with the phenomenological-hermeneutical approach.
Background: Generalized pustular psoriasis (GPP) is a relapsing-remitting chronic disease characterized by painful pustules with systemic symptoms that has a negative impact on quality of life. The psychosocial and economic burden of this rare condition is not well characterized.
Objectives: To qualitatively characterize the cumulative burden of GPP on patients' quality of life and psychosocial wellbeing.