Publications by authors named "B R Villumsen"

Introduction: This second part of the S2k guidelines is an update of the 2015 S1 European guidelines.

Objective: These guidelines aim to provide an accepted decision aid for the selection, implementation and assessment of appropriate and sufficient therapy for patients with hidradenitis suppurativa/acne inversa (HS).

Methods: The chapters have been selected after a Delphi procedure among the experts/authors.

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This review describes that a core outcome set (COS) represents a consensus-based minimum set of outcomes to be collected and reported in clinical trials involving a particular disease or population. A COS serves as a guideline for global consensus on which outcome domains should be collected in all clinical trials. After defining what to measure, it becomes crucial to reach consensus on how to measure it.

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Article Synopsis
  • Patients often experience significant fear and anxiety about anesthesia and surgery, highlighting the need for better understanding and addressing their emotional needs.
  • This study aims to investigate patients' concerns, perceived worry, and fear related to surgery by directly asking them on the day of their procedure.
  • The research utilizes a mixed methods approach, combining qualitative and quantitative data from surveys completed by patients in perioperative departments across Denmark during the "What Matters To You" Day in June 2024.
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Article Synopsis
  • The global burden of hidradenitis suppurativa (HS) is poorly understood due to limited and varying prevalence data, which has been affected by different methodologies and diagnostic approaches.
  • The Global Hidradenitis Suppurativa Atlas (GHiSA) aims to accurately determine HS prevalence by using a validated questionnaire for screening, followed by physician validation for positive cases, assessing about 10% of negatives for diagnostic accuracy.
  • Currently, GHiSA is conducting prevalence studies in 58 countries to create a comprehensive global prevalence estimate through proportional meta-analysis, allowing for direct international comparisons that were not previously feasible.
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Article Synopsis
  • There are existing registries for hidradenitis suppurativa (HS) in Europe and the USA, but there is no global standard on the data collected, which complicates international collaboration.
  • The goal is to create a core dataset (CDS) for global HS registries covering demographics, comorbidities, clinical findings, patient outcomes, and treatments.
  • A Delphi process involving 20 experts from eight countries resulted in a consensus on 48 items to be included in all HS registries, promoting consistent data collection worldwide.
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