Publications by authors named "B J Sawatzky"

Background: Chronic rhinosinusitis (CRS) and olfactory dysfunction (OD) are prevalent disease complications in people with cystic fibrosis. These understudied comorbidities significantly impact quality of life. The impact of highly effective modulator therapy (HEMT) in young children with cystic fibrosis (YCwCF) on these disease complications is unknown.

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Purpose: Wheelchair users experience many barriers to physical activity as affordable and accessible exercise equipment options are limited. Thus, the home-based adapted rower (aROW) and gym-based aROW were developed. The objectives were to determine: 1) wheelchair users' preferences, perspectives, facilitators, and barriers to using the home-based versus the gym-based aROW, 2) perceived usability of the home and gym aROWs, and 3) recommendations to adapt the aROW further for home and community use.

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Article Synopsis
  • The study aimed to create standardized common data elements (CDEs) for arthrogryposis multiplex congenita (AMC) to support international clinical research and multisite studies.
  • A mixed-methods approach was used, involving focus groups and Delphi surveys, with participation from 45 experts and individuals with AMC experience from 11 countries.
  • The resulting CDEs include 321 data elements and 19 measures, which will enhance data collection on AMC and promote collaborations, knowledge sharing, and better understanding of the condition through systematic research.
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