Objective: This study was conducted to determine the level of health literacy, digital healthy diet literacy, and physical activity of adult individuals to evaluate the relationship of physical activity with health literacy and digital healthy diet literacy and to examine the determinants of physical activity level.
Design And Method: It is a descriptive and correlational study. The sample of the study consists of 404 individuals aged 18-65.
Introduction: 2022 was a landmark year with two adeno-associated viral vectors (AAVs) receiving conditional marketing authorization from EMA for the treatment of persons with severe haemophilia A and severe to moderately severe haemophilia B and a third in 2024. Gene therapy is a transformative, irreversible treatment with long-lasting effects, necessitating development of new clinical pathways to ensure optimal outcomes.
Aim: To develop a consensus framework and service specification for delivery of AAV gene therapy for haemophilia in adults within the UK using the hub-and-spoke model proposed by the European Association of Haemophilia and Allied Disorders and the European Haemophilia Consortium.