Publications by authors named "Arwert H"
Background/objective: A systematic review was conducted on the association between ethnicity and health-related quality of life in post-stroke populations.
Methods: In February 2024, a comprehensive search was conducted across several databases. Studies were included when they had at least 2 distinct ethnic post-stroke groups for comparison, along with the utilization of validated questionnaires to measure health-related quality of life.
Background: The Patient-Reported Outcomes Measurement Information System® (PROMIS) Profile Computer Adaptive Testing (CAT) consists of seven CATs and one single item measuring most relevant aspects of health-related quality of life (HRQoL). The aim of our study was to determine construct validity and floor and ceiling effects of the PROMIS Profile CAT in Dutch people with stroke.
Methods: People with stroke receiving rehabilitation completed the PROMIS Profile CAT and the EuroQol-5 dimensions (EQ5D).
Background: Poststroke health-related quality of life (HRQOL) is an important outcome that may be influenced by ethnicity.
Objective: To compare long-term HRQOL, mental health and healthcare utilization between stroke survivors with a European (EUB) and non-European background (NEUB) in a hospital population.
Methods: In this retrospective cohort study patients completed questionnaires 2-5 years after stroke.
Background: Knowledge on long-term participation is scarce for patients with paid employment at the time of stroke.
Objective: Describe the characteristics and the course of participation (paid employment and overall participation) in patients who did and did not remain in paid employment.
Methods: Patients with paid employment at the time of stroke completed questions on work up to 30 months after starting rehabilitation, and the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-P, Frequency, Restrictions and Satisfaction scales) up to 24 months.
Purpose: To assess the presence of upper extremity pain after stroke over time and the course of its intensity in patients with persistent pain.
Materials And Methods: Patients with stroke completed a question on the presence of upper extremity pain (yes/no) and rated its intensity with a visual analogue scale (0-10) at 3, 18, and 30 months after starting multidisciplinary rehabilitation. The presence of upper extremity pain and its intensity over time were analysed with Generalized Estimating Equations models and Linear Mixed Models, respectively.
Objective: To systematically describe the use and outcomes of Patient-Reported Outcomes Measurement Information System (PROMIS) measures in clinical studies in populations with stroke.
Data Sources: A systematic search on the use of PROMIS measures in clinical stroke studies in 9 electronic databases.
Study Selection: Studies had to be original, reporting on outcome data using PROMIS measures in populations with stroke (ischemic and/or hemorrhagic), from January 1st, 2007.
What works and why in the implementation of eRehabilitation after stroke - a process evaluation.
Disabil Rehabil Assist Technol
February 2024
Background: Implementation of an eRehabilitation intervention named Fit After Stroke @Home (Fast@home) - including cognitive/physical exercise applications, activity-tracking, psycho-education - after stroke resulted in health-related improvements. This study investigated what worked and why in the implementation.
Methods: Implementation activities (information provision, integration of Fast@home, instruction and motivation) were performed for 14 months and evaluated, using the Medical Research Council framework for process evaluations which consists of three evaluation domains (implementation, mechanisms of impact and contextual factors).
Purpose: Both the International Consortium for Health Outcomes Measurement and the National Institutes of Health recommend the use of Patient-Reported Outcomes Measurement Information System (PROMIS®) measures in clinical care and research for stroke patients. This study aimed to systematically review the literature on the measurement properties and interpretability of PROMIS measures in stroke patients.
Methods: Nine databases were searched from January 1st, 2007 till April 12th, 2021 for studies concerning the measurement properties and interpretability of PROMIS measures in stroke patients.
Aim: To describe the course of depressive symptoms during the first 12 months post-stroke and its association with unmet needs.
Methods: A prospective cohort study among stroke patients admitted to inpatient rehabilitation. Depressive symptoms were assessed 3, 6, and 12 months post-stroke using the Hospital Anxiety and Depression Scale, and categorized into three trajectories: no (all times <8), non-consistent (one or two times ≥8), or persistent (all times ≥8) depressive symptoms.
Objective: To estimate societal costs and changes in health-related quality of life in stroke patients, up to one year after start of medical specialist rehabilitation.
Design: Observational.
Patients: Consecutive patients who received medical specialist rehabilitation in the Stroke Cohort Outcomes of REhabilitation (SCORE) study.
Health Care Use and Its Associated Factors 5-8 Years after Stroke.
J Stroke Cerebrovasc Dis
November 2019
Objectives: To describe health care use and its associated factors in the chronic phase after stroke.
Methods: Patients completed a questionnaire on health care use, 5-8 years after hospital admission for stroke. It comprised the number of visits to physicians or other health care professionals over the past 6 months (Physician-visits; Low ≤1 or High ≥2) and other health care professionals (Low = 0 or High ≥ 1).
Article Synopsis
- The study aimed to explore factors influencing the willingness to use eRehabilitation among stroke patients, caregivers, and healthcare professionals.
- The survey revealed that perceived benefits, like reduced travel and improved motivation, increased the likelihood of adopting eRehabilitation, while a lack of knowledge negatively impacted willingness, especially among patients.
- The findings indicate a need for improved education on eRehabilitation's advantages and further research to enhance understanding and use among different user groups.
Article Synopsis
- A user-centered design approach enhances the effectiveness of eHealth interventions in stroke rehabilitation, but there's a lack of insight into the needs of end-users like patients, caregivers, and health professionals.
- Eight focus groups were conducted to gather requirements from both patients/informal caregivers and health professionals, resulting in the identification of 45 distinct requirements related to accessibility, usability, and content for a stroke eRehabilitation program.
- The findings revealed that while both groups had overlapping requirements, there were also significant differences, highlighting the importance of incorporating the views of all end-users to create effective eRehabilitation tools.
Purpose: Structured application of patient-reported outcome measures (PROMs) is a key element in Value Based Healthcare. This study aimed to evaluate the feasibility of a broad set of PROMs reflecting similar patient reported health domains as proposed within the International Standard Set of Patient-Centered Outcome Measures After Stroke within the first year after stroke.
Methods: The study included consecutive stroke patients admitted to inpatient or outpatient specialized rehabilitation.
Background: The uptake of eRehabilitation programs in stroke care is insufficient, despite the growing availability. The aim of this study was to explore which factors influence the uptake of eRehabilitation in stroke rehabilitation, among stroke patients, informal caregivers, and healthcare professionals.
Methods: A qualitative focus group study with eight focus groups (6-8 participants per group) was conducted: six with stroke patients/informal caregivers and two with healthcare professionals involved in stroke rehabilitation (rehabilitation physicians, physical therapists, occupational therapists, psychologists, managers).
Many caregivers of stroke patients experience a high burden. This study aims to describe the course of burden in individual caregivers in the first year after stroke. This study is part of the Stroke Cohort Outcomes of REhabilitation study, a multicentre, longitudinal cohort study including consecutive stroke patients admitted to two rehabilitation facilities.
View Article and Find Full Text PDFIncorporating user requirements in the design of e-rehabilitation interventions facilitates their implementation. However, insight into requirements for e-rehabilitation after stroke is lacking. This study investigated which user requirements for stroke e-rehabilitation are important to stroke patients, informal caregivers, and health professionals.
View Article and Find Full Text PDFBackground: Patients' expectations of the outcomes of rehabilitation may influence the outcomes and satisfaction with treatment.
Objectives: For stroke patients in multidisciplinary rehabilitation, we aimed to explore patients' outcome expectations and their fulfilment as well as determinants.
Methods: The Stroke Cohort Outcomes of REhabilitation (SCORE) study included consecutive stroke patients admitted to an inpatient rehabilitation facility after hospitalisation.
Objective: The aim of the study was to ascertain the prevalence of depressive mood and its determinants in the chronic phase after stroke.
Design: Five hundred seventy-six consecutive patients were invited to participate 2 to 5 yrs after hospitalization for a first-ever stroke. Stroke characteristics at hospitalization were collected retrospectively from medical records.
Patient reported outcomes of hand function three years after stroke.
Top Stroke Rehabil
January 2018
Objective: To comprehensively describe hand function and associated factors among stroke survivors by means of the Michigan Hand Outcomes Questionnaire (MHQ; 6 domains; score 0-100, worst-best).
Methods: In this cross-sectional study, stroke patients were invited to complete a set of questionnaires on hand function, socio-demographic characteristics, mental functioning, daily activities, quality of life, and caregiver strain. Stroke characteristics were collected retrospectively from medical records.
Background: Unmet needs are common after stroke. We aimed to translate the 22-item Longer-term Unmet Needs after Stroke (LUNS) Questionnaire and validate it in a Dutch stroke population.
Methods: The LUNS was translated and cross-culturally adapted according to international guidelines.
Purpose To describe factors associated with RTW in patients 2-5 years after stroke. Methods Cross sectional study, including patients 2-5 years after hospitalization for a first-ever stroke, who were <65 years and had been gainfully employed before stroke. Patients completed a set of questionnaires on working status and educational level, physical functioning (Frenchay Activities Index, FAI), mental functioning (Hospital Anxiety and Depression Scale, HADS), Coping Orientations to Problems Experienced, (COPE easy) and quality of life (Short-Form(SF)-36 and EQ(Euroqol)-5D).
View Article and Find Full Text PDFObjective: To describe practice variation in the structure of stroke rehabilitation in 4 specialized multidisciplinary rehabilitation centres in the Netherlands.
Design And Methods: A multidisciplinary expert group formulated a set of 23 elements concerning the structure of inpatient and outpatient stroke rehabilitation, categorized into 4 domains: admission-related (n = 7), treatment-related (n = 10), client involvement-related (n = 2), and facilities-related (n = 4). In a cross-sectional study in 4 rehabilitation centres data on the presence and content of these elements were abstracted from treatment programmes and protocols.
Validity of the Michigan Hand Outcomes Questionnaire in Patients With Stroke.
Arch Phys Med Rehabil
February 2016
Objective: To investigate the measurement properties of the Dutch version of the Michigan Hand Outcomes Questionnaire (MHQ) in patients with stroke.
Design: Validation study.
Setting: Outpatient rehabilitation clinic.
Background: This study aims to contribute to the knowledge of the influence of comorbidity in OA. The objectives of the study were (i) to describe the prevalence of comorbidity and (ii) to describe the relationship between comorbidity (morbidity count, severity and the presence of specific diseases) and limitations in activities and pain in elderly patients with knee or hip OA using a comprehensive inventory of comorbidity.
Methods: A cross-sectional cohort study was conducted, in which 288 elderly patients with hip or knee osteoarthritis were included.