Publications by authors named "Annunziata Giordano"
Behav Sci (Basel)
November 2023
Article Synopsis
- Pompe disease (PD) is a rare metabolic disorder that significantly impacts children's development and quality of life, while also posing emotional and physical challenges for their parents.
- A study involving 14 parents showed a strong correlation between poorer quality of life for children and higher caregiver burdens, with over half of the parents reporting moderate to severe burden levels.
- Emotional support and effective communication from healthcare professionals are essential for helping parents cope, as they deal with uncertainties and strive to maintain family dynamics amidst the challenges of PD.
