Representations of illness and treatments in patients with desmoid tumors: A thematic content analysis of a qualitative study.

Purpose: Desmoid tumors are a rare and complex disease characterized by a great diversity in its forms, localizations, and prognosis. Both the disease and the treatment can have a significant impact on quality of life in patients. Given the complexity of the disease and its rarity, the literature on patients' experience with the disease scarce.