Publications by authors named "Anne Sophie Hallet"
Article Synopsis
- The study looked at what caregivers think is important to measure in clinical trials for people with Dravet syndrome, a type of epilepsy.
- They used a survey with 11 questions and got answers from 153 caregivers across France, Germany, and Italy.
- Caregivers said that things affecting daily life were more important to focus on than seizure-related measures, and older patients had different outcomes than younger ones.
We explored the impact of coronavirus virus 2019 (COVID-19) pandemic on patients with Dravet syndrome (DS) and their family. With European patient advocacy groups (PAGs), we developed an online survey in 10 languages to question health status, behavior, personal protection, and health services before and after lockdown. Approximately 538 European PAG members received electronic invitations.
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