Publications by authors named "Anne Lanceley"

Purpose: This study aims to identify a combination of clinical, demographic, and patient competence determinants of patients' communication with doctors and nurses in an international sample of cancer patients.

Methods: For our cross-sectional study, cancer patients assessed their communication with their doctors or nurses at the start of their treatment. Patients completed EORTC communication questionnaire QLQ-COMU26 to assess ten areas of communication with their doctor or nurses plus another item to assess how competent they felt when communicating with professionals.

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Background: The European Organization of Research and Treatment of Cancer (EORTC) has recently developed and validated a patient-reported outcome measure (PROM) for sexual health (SH) in cancer patients. Here, we present results from a secondary analysis of the EORTC QLQ-SH22 validation study. The objective was to investigate the impact of cancer treatment on SH over the disease trajectory into survivorship in patients who underwent curative treatment.

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Article Synopsis
  • - The EORTC QLQ-COMU26 is a newly developed questionnaire aimed at assessing how cancer patients perceive their communication with healthcare professionals, tested for validity and reliability among a diverse international sample.
  • - In a study with 498 cancer patients across 10 European countries, Japan, Jordan, and India, the questionnaire demonstrated clarity and minimal emotional distress, with strong reliability and appropriate scale structure confirmed through various assessments.
  • - The QLQ-COMU26 effectively identified differences in patient experiences based on factors like sex, education, and satisfaction with communication, as well as captured changes over time related to patient interactions with healthcare providers.
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Objectives: Sexuality is an important dimension of health-related quality of life (HRQOL) in cancer patients. Studies evidence that most patients report impairments of their sexual health related to their disease or its treatment. The Quality of Life Group of the European Organization for the Research and Treatment of Cancer (EORTC) developed a patient reported outcome measure assessing multidimensional aspects of sexual health.

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  • The study explores the experiences of parents of extremely preterm adolescents (born <27 weeks) through semi-structured interviews with 22 mothers and 1 father.
  • It identifies three main themes: parental ambitions for their child, perceptions of the child’s abilities, and the parenting behaviors that reflect these ambitions.
  • Findings suggest that parents believe their actions can influence their child's future independence, with some using non-intensive methods while others adopt more intensive practices based on their expectations of the child’s challenges.
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Introduction: There is a growing emphasis on proficiency-based progression within surgical training. To enable this, clearly defined metrics for those newly acquired surgical skills are needed. These can be formulated in objective assessment tools.

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Objective: Consent in ante-natal and birthing contexts is often challenging, controversial and poorly understood. Increasing evidence indicates that ethnic minority women's overall experiences of ante-natal care are unsatisfactory, but little is known about their involvement in the consent process. This study aims to explore the views and experiences of ethnic minority women when making decisions requiring their consent.

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  • The study aims to assess the baseline symptom burden experienced by patients with recurrent ovarian cancer and its relationship with progression-free survival and overall survival.
  • Analysis involved 948 patients with either platinum-resistant or potentially platinum-sensitive recurrent ovarian cancer receiving advanced chemotherapy, revealing that a significant majority experienced mild to severe symptoms, including pain, fatigue, and anxiety.
  • Results showed that higher symptom burden was linked to reduced progression-free survival and overall survival, highlighting the need for effective symptom management in clinical settings and trials.
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Objective: Induction of labour (IOL) does not require formal written consent, and little is known about how consent operates in this context. This prospective study explores pregnant women's experiences of the IOL consent process.

Methods: Qualitative study using semi-structured, interviews with thirteen women admitted to hospital for IOL.

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Objective: To explore midwives' knowledge and understanding of the law and practice of consent in the post-Montgomery world.

Design: Cross-sectional online survey. Descriptive statistical analysis of midwives' survey responses.

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Objective: To determine whether extremely preterm (EP) birth exerts persisting effects on parents in early adolescence.

Design: Cross-sectional survey conducted between March 2017 and October 2018.

Setting: Evaluation of a longitudinal population-based birth cohort in England at 11 years of age (EPICure2@11 Study).

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Objectives: Psychological interventions for advanced cancer patients are effective in decreasing distress but are not well integrated into cancer care. Oncology nurses are well positioned to deliver such interventions, and their participation may enhance professional satisfaction and wellbeing. Managing Cancer and Living Meaningfully (CALM) is an evidence-based psychotherapy supporting advanced cancer patients.

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Background: People with advanced cancer experience psychological distress due to physical symptoms, functional decline, and a limited prognosis. Difficult thoughts, feelings, and emotions may exacerbate distress and lead to avoidance of these experiences which is sometimes referred to as experiential avoidance (EA). Advanced cancer patients may be more likely to engage in EA especially when no obvious solutions to their problems exist.

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Objectives: Supporting cancer patients during COVID-19 has posed unique challenges for health care providers. We investigated patient and carer-charity interactions to explore the role of charities and identify concerns expressed by patients. The study aims to address these concerns and learn how health care providers can support patients.

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  • The Measure of Ovarian Symptoms and Treatment (MOST) is a validated tool designed to assess the benefits and side effects of palliative chemotherapy in women with recurrent ovarian cancer (ROC).
  • Researchers analyzed data from a cohort of 762 women to identify how different symptoms co-occurred and how they impacted health-related quality of life (HRQL).
  • Four main symptom clusters were found—abdominal, peripheral neuropathy, nausea and vomiting, and psychological symptoms—indicating that regular screening and management of these symptoms could improve HRQL for affected women.
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Background: Legal and social changes mean that information sharing and consent in antenatal and intrapartum settings is contentious, poorly understood and uncertain for healthcare professionals. This study aimed to investigate healthcare professionals' views and experiences of the consent process in antenatal and intrapartum care.

Methods: Qualitative research performed in a large urban teaching hospital in London.

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Background: Consent to episiotomy is subject to the same legal and professional requirements as consent to other interventions, yet is often neglected. This study explores how women experience and perceive the consent process.

Methods: Qualitative research in a large urban teaching hospital in London.

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Objective: Advanced stage at diagnosis and delayed presentation are common in ovarian cancer (OC). The objective of the current study was to explore the association of adult attachment pattern with delays in accessing specialist oncology care in patients with OC.

Methods: A cross-sectional structured interview study of patients with OC presenting to an Indian cancer center was undertaken.

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Objective: The Gynecologic Cancer InterGroup (GCIG)-Symptom Benefit Study was designed to evaluate the effects of chemotherapy on symptoms and health-related quality of life (HRQL) in women having chemotherapy for platinum resistant/refractory recurrent ovarian cancer (PRR-ROC) and potentially platinum sensitive with ≥3 lines of chemotherapy (PPS-ROC ≥3).

Methods: Participants completed the Measure of Ovarian Cancer Symptoms and Treatment (MOST) and European Organization for Research and Treatment of Cancer (EORTC) Quality of Life Questionnaire QLQ-C30 questionnaires at baseline and every 3-4 weeks until progression. Participants were classified symptomatic if they rated ≥4 of 10 in at least one-third of symptoms in the MOST index.

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Objective: Consent on the labour ward is a complex and controversial topic which is poorly understood. Consenting labouring women is recognised as challenging and problematic, and thus, it is uncertain that pregnant women experience true informed consent during labour. This project aims to explore healthcare professionals' views and experiences of consent practice on the labour ward.

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Background: The European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life Group developed a questionnaire to assess sexual health in patients with cancer and cancer survivors. This study evaluates the psychometric properties of the questionnaire.

Methods: The 22-item EORTC sexual health questionnaire (EORTC QLQ-SH22) was administered with the EORTC QLQ-C30 to 444 patients with cancer.

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Purpose: Evidence suggests that the patient-reported outcome (PRO) content of cancer trial protocols is frequently inadequate and non-reporting of PRO findings is widespread. This qualitative study examined the factors influencing suboptimal PRO protocol content, implementation, and reporting, and use of PRO data during clinical interactions.

Methods: Semi-structured interviews were conducted with four stakeholder groups: (1) trialists and chief investigators; (2) people with lived experience of cancer; (3) international experts in PRO cancer trial design; (4) journal editors, funding panelists, and regulatory agencies.

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