Publications by authors named "Anna Storms"
Study protocol of the HessenKohorte2042: a prospective, longitudinal cohort study characterising quality of life in people with Parkinson's disease and their caregivers using a bio-psycho-social approach.
BMJ Open
July 2024
Article Synopsis
- Quality of life (QoL) is crucial for monitoring therapies in Parkinson's disease patients (PwPD) and their caregivers, as both can experience a decline in QoL due to the disease’s varied symptoms and its psychosocial impact.
- A longitudinal study will track 1,000 PwPD and their caregivers over 20 years, assessing QoL through clinical data, self-reports, biospecimens, and MRI scans to better understand the factors influencing QoL.
- The findings aim to enhance diagnostics, prognostics, and therapy adjustments, with results slated for publication in peer-reviewed journals to ensure broad dissemination and impact.
Background: People in very old age (VOA) are expected to be confronted with particularly negative stereotypes. These influence societally shared behavior towards and judgements about them. Such external evaluations of individuals' lives are considered a crucial part of their quality of life (QoL).
View Article and Find Full Text PDFBackground: Individuals' ideals and aspirations are considered to constitute a central reference frame for subjective evaluations of their perceived reality, and, thus, to be crucial for individual quality of life (QoL) outcomes. By examining individual values and spirituality in very old people, the aim of this study was to describe two constructs representing the aspirations of the individual, as well as the relation of these constructs to both hedonic and eudaimonic QoL outcomes in very old age (VOA).
Material And Methods: Cross-sectional data from a representative survey of people in VOA (NRW80+, n = 1863) were used.