Stories about personal experiences of assisted dying, a term comprising both instances when a lethal substance is administered by a physician or by the patient themselves, are frequently cited in law-making processes. These experiences of healthcare systems and the laws governing end-of-life procedures thereby interactively influence the future of medicine at the deathbed. With more countries legalising some form of assisted dying or opening political debate about the issue, addressing how these personal stories shape public opinions and social institutions is timely.
View Article and Find Full Text PDFWithin bioethics, Kant's conception of autonomy is often portrayed as excessively rationalistic, abstract, and individualistic, and, therefore, far removed from the reality of patients' needs. Drawing on recent contributions in Kantian philosophy, we argue that specific features of Kantian autonomy remain relevant for medical ethics and for patient experience. We use contemporary end-of-life illness narratives-a resource that has not been analyzed with respect to autonomy-and show how they illustrate important Kantian themes, namely, the duty to know oneself, the interest in elaborating universalizable principles, and the emphasis on ideals as points of orientation that guide behavior without ever being fully realized.
View Article and Find Full Text PDFEthical issues raised by the outbreak of COVID-19 have predominantly been addressed through a public health ethics lens. This article proposes that the rising COVID-19 fatalities and the World Health Organization's failure to include palliative care as part of its guidance on how to maintain essential health services during the pandemic have exposed palliative care as an underlying global crisis. It therefore calls for a different ethical framework that includes a care ethics perspective and thereby addresses the ways in which the pandemic has triggered new difficulties in ensuring the delivery of appropriate end-of-life care for the dying.
View Article and Find Full Text PDFIn A Very Easy Death Simone de Beauvoir documents the illness, hospitalization, and death of her mother Françoise. Critics in the fields of bioethics and the medical humanities have concentrated on the text's paternalistic doctor-patient encounter, which culminates in the withholding of the cancer diagnosis from Beauvoir's mother and entails an unnecessary medical intervention to which the patient never consents. Reviewing the text's reception, this article argues that a focus on the ways in which it depicts breaches of several tenets of medical ethics have decontextualized A Very Easy Death and occluded the key role Beauvoir plays in the doctor-patient relationship.
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