Patient Education for CKD and Decision Support in Primary Care: Findings From the EPIK Pilot Study.

Rationale & Objective: Chronic kidney disease (CKD) affects millions of people in the United States, yet effective interventions to address gaps in patient knowledge and engagement are not well-established. We developed and pilot tested a brief educational decision aid for patients with CKD who are being treated in primary care settings.

Study Design: Pilot quality improvement (QI) study of a decision aid intervention.

Experiences of Exergaming for Upper Extremity Exercises in People With Systemic Sclerosis.

Impaired upper extremity (UE) function has limited activities of daily living in people with systemic sclerosis (SSc). Exergaming, a combination of gaming and exercises, could be a novel way to improve UE exercise engagement. The objective of this study was to examine the usability of exergaming and to investigate participant experiences after exergaming among people with SSc.

Cognitive difficulties in people with systemic sclerosis: a qualitative study.

Objectives: This study used a qualitative approach to explore how people with SSc experience cognitive changes and how cognitive difficulties impact their functioning.

Methods: Four 90-min focus groups of adults with SSc and self-reported changes in cognition were recruited from a SSc research registry and targeted social media. A focus group guide elicited information from participants via open-ended questions.