Publications by authors named "Amrit Sangha"
Background: Practitioners and researchers require an outcome measure that accurately identifies the range of common treatment-induced changes in sexual function and well-being experienced by women after cervical or endometrial cancer. This systematic review critically appraised the measurement properties and clinical utility of instruments validated for the measurement of female sexual dysfunction (FSD) in this clinical population.
Methods: A bibliographic database search for questionnaire development or validation papers was completed and methodological quality and measurement properties of selected studies rated using the Consensus-based Standards for the selection of health Measurement Instrument (COSMIN) checklist.
Objective: This study developed and piloted an educational intervention to support healthcare professionals (HCPs) to provide supportive care for families when a parent has cancer.
Methods: Programme development followed the Medical Research Council (MRC) framework, beginning with examination of theory and research, and consultation with experts. The programme content incorporated attachment theory, child development and family systems theory.
Article Synopsis
- - The demand for palliative care services for children is increasing due to advancements in medical technology, making effective outcome measures essential for improving care quality and effectiveness.
- - A systematic review analyzed 3460 articles, narrowing it down to 41 relevant papers that assessed the psychometric properties of 22 health-related quality-of-life measures for pediatric palliative care, revealing significant gaps in data quality and consistency.
- - No ideal outcome assessment measure currently exists for pediatric palliative care, as many standard measures do not adequately address the diverse needs of affected children; further efforts are needed to adapt or create more tailored assessment tools.
The majority of research ideas are proposed by clinicians or scientists and little is currently known about which areas of research patients feel are important. We performed a 4 week pilot patient survey at the Royal Marsden (a specialist cancer centre) to investigate patients' views on priorities for cancer research. A total of 780 patients completed the survey and the top research priorities were identified as: detection and prevention of cancer, scientific understanding, curative treatment and personalised treatment.
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- The study aimed to explore patient experiences in London NHS cancer trusts beyond what traditional surveys capture, to help improve care based on those insights.
- A total of 15,403 comments from over 6,500 patients were analyzed, revealing two-thirds of feedback was positive, particularly regarding care quality, while a significant portion highlighted areas needing improvement like communication and waiting times.
- The findings also pointed to problems with the survey itself, such as ambiguities and challenges for patients who received care from multiple trusts, suggesting the need for better patient feedback mechanisms.
Objectives: In 2009 more women attended cervical screening in England and Wales than in the previous year. Described as the 'Jade Goody Effect' this was attributed to the death from cervical cancer of a UK celebrity. The present study aimed to establish which sociodemographic characteristics were associated with being influenced by Jade Goody's story.
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