Objective: Our objective was to identify perceived barriers and strategies to improve primary care encounters, as reported by adults with autism spectrum disorder (ASD), caregivers of adults with ASD, and primary care providers (PCPs) treating adults with ASD.
Method: As part of a larger mixed-methods design, adults with ASD, caregivers, and PCPs (N = 78) in Los Angeles and Philadelphia completed surveys examining barriers to care and strategies to improve care.
Results: Multiple barriers to care were reported by adults with ASD and caregivers, including communication and sensory challenges.
Objective: To examine the association between receiving adequate care coordination (CC) with family-provider relations and family/child outcomes.
Methods: We analyzed data from the 2005-2006 National Survey of Children With Special Health Care Needs. Eligible subjects were the 88% of families asked about experience with CC, service use, and communication.