Publications by authors named "Amanda Siriwardana"
Objectives: The EQ-5D-5L is a commonly used health-related quality of life instrument for evaluating interventions in patients receiving dialysis; however, the minimal important difference (MID) that constitutes a meaningful treatment effect for this population has not been established. This study aims to estimate the MID for the EQ-5D-5L utility index in dialysis patients.
Methods: 6-monthly EQ-5D-5L measurements were collected from adult dialysis patients between April 2017 and November 2020 at a renal network in Sydney, Australia.
Introduction: Shared treatment decision-making and planning of care are fundamental in advanced chronic kidney disease (CKD) management. There are limited data on several key outcomes for the elderly population including survival, quality of life, symptom burden, changes in physical functioning and experienced burden of healthcare. Patients, caregivers and clinicians consequently face significant uncertainty when making life-impacting treatment decisions.
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- Patients with end-stage kidney disease often experience a heavy symptom burden, which can negatively affect their quality of life and survival; however, renal supportive care (RSC) has shown effectiveness in managing symptoms for those not on dialysis.
- This study aimed to evaluate the effects of RSC on symptom management in dialysis patients, following 127 individuals referred to an RSC clinic over a span of several years.
- Results indicated a significant improvement in physical and emotional symptoms after RSC intervention, with the most severe symptoms (like difficulty sleeping and pain) showing the greatest improvement, sustained even after long-term follow-up without altering dialysis treatments.