Publications by authors named "Amanda R Rabinowitz"

Article Synopsis
  • Ecological momentary assessment (EMA) is a method of collecting real-time self-reported data through smartphones, which holds promise for studying behaviors and experiences in individuals with cognitive impairments, like those from traumatic brain injury (TBI).
  • This study explored adherence to a 7-week EMA protocol involving responses five times daily from participants with moderate-to-severe TBI, finding an overall response rate of 65% that decreased slightly over time.
  • Results indicated that better educational background and episodic memory correlated with higher response rates, highlighting the need for personalized approaches to improve adherence among individuals with varying levels of cognitive challenges.
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Objective: To create a census-based composite neighborhood socioeconomic deprivation index (NSDI) from geocoded residential addresses and to quantify how NSDI aligns with individual-level socioeconomic factors among people with traumatic brain injury (TBI).

Setting: Community.

Participants: People enrolled in the TBI Model Systems National Database (TBIMS NDB).

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Home-based exercises are an important component of stroke rehabilitation but are seldom fully completed. Past studies of exercise perseverance in the general public have suggested the importance of early exercise frequency and schedule consistency (in terms of which days of the week exercises are performed) because they encourage habit formation. To test whether these observations apply after a stroke, we leveraged data from 2,583 users of a sensor-based system (FitMi) developed to motivate movement exercises at home.

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Objective: To describe the incidence of self-reported COVID-19 history in a longitudinal cohort of individuals with complicated mild to severe traumatic brain injury (TBI) and describe demographic, injury and functional differences based on history of COVID-19 infection.

Design: Individuals with complicated mild to severe TBI aged 16 or older at time of injury who were enrolled in the TBI Model Systems longitudinal cohort study, completed a baseline or follow-up interview between October 1, 2021-March 31, 2023, and provided information about COVID-19 history and timing of COVID-19 infection was collected.

Results: Of the 3,627 individuals included in the analysis, 29.

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Article Synopsis
  • The study aimed to understand personal, clinical, and environmental factors linked to four unique participation profiles in individuals with traumatic brain injury (TBI) one year or more post-injury.
  • Participants included 408 individuals from the TBI Model Systems who completed phone interviews about their experiences and backgrounds.
  • The analysis revealed key distinctions among the participation profiles based on factors like education, employment, community type, and cognitive function, highlighting trends in how these factors influence engagement in community activities.
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Article Synopsis
  • A study focused on older adults with chronic moderate to severe traumatic brain injury (TBI) aimed to understand the impact of apathy and depression on cognitive performance and psychosocial functioning.* -
  • Researchers found that severity of apathy was linked to cognitive performance, particularly executive functioning, while depression did not show a significant correlation with cognition after adjustments.* -
  • The presence of both apathy and depression negatively affected health-related quality of life (HRQoL) and societal participation, highlighting the need for tailored interventions for this population.*
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Article Synopsis
  • - The study analyzed data from 447 individuals with moderate to severe traumatic brain injury (TBI) to investigate the frequency and timing of repetitive head impacts (RHI) and their influence on mental health outcomes.
  • - Findings revealed that most RHI incidents were sports-related (61.1%), with post-injury exposures linked to increased depression and anxiety symptoms compared to pre-injury exposures.
  • - The research underscores the importance of evaluating RHI in the context of TBI for better mental health assessments and the development of targeted interventions to support affected individuals.
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Objective: To determine if the interaction of opiate misuse and marijuana use frequency is associated with behavioral health outcomes.

Setting: Community.

Participants: Three thousand seven hundred fifty participants enrolled in the Traumatic Brain Injury Model Systems who completed the Pain Survey and had complete opioid use and marijuana use information.

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Article Synopsis
  • * Participants included 3,804 individuals aged 1 to 30 years post-injury, who completed a Pain Survey about 8 years after their injury.
  • * Results showed that individuals with current chronic pain faced significantly worse psychosocial outcomes, such as higher levels of PTSD, anxiety, and depression, and lower life satisfaction and community participation, compared to those with no pain or resolved past pain.
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Article Synopsis
  • The study assesses chronic pain prevalence in individuals with traumatic brain injury (TBI), finding that about 60% experience chronic pain at some point.
  • It compares three groups: those with current chronic pain, past chronic pain, and no chronic pain, noting that current pain is associated with worse functional outcomes.
  • The results highlight the need for more effective pain management and the inclusion of pain metrics in future research related to TBI.
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To characterize societal participation profiles after moderate-severe traumatic brain injury (TBI) along objective (Frequency) and subjective (Satisfaction, Importance, Enfranchisement) dimensions. We conducted secondary analyses of a TBI Model Systems sub-study ( = 408). Multiaxial assessment of participation included the Participation Assessment with Recombined Tools-Objective and -Subjective questionnaires (Participation Frequency and Importance/Satisfaction, respectively) and the Enfranchisement Scale.

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Objective: To develop new diagnostic criteria for mild traumatic brain injury (TBI) that are appropriate for use across the lifespan and in sports, civilian trauma, and military settings.

Design: Rapid evidence reviews on 12 clinical questions and Delphi method for expert consensus.

Participants: The Mild Traumatic Brain Injury Task Force of the American Congress of Rehabilitation Medicine Brain Injury Special Interest Group convened a Working Group of 17 members and an external interdisciplinary expert panel of 32 clinician-scientists.

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Traumatic brain injury (TBI) is a global health priority, associated with substantial burden. Historically conceptualised as an injury event with finite recovery, TBI is now recognised as a chronic condition that can affect multiple domains of health and function, some of which might deteriorate over time. Many people who have had a TBI remain moderately to severely disabled at 5 years, are rehospitalised up to 10 years post-injury, and have a reduced lifespan relative to the general population.

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Objective: To examine the effect of the COVID-19 pandemic on societal participation in people with moderate-to-severe traumatic brain injury (TBI).

Design: Cross-sectional retrospective cohort.

Setting: National TBI Model Systems centers, United States.

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Objective: To evaluate major and everyday experiences of discrimination (MED and EED, respectively) in relation to behavioral health outcomes in people with traumatic brain injury (PwTBI).

Setting: Outpatient research laboratory.

Participants: Adults, 50 years or older, with a chronic (1+ year) history of moderate or severe TBI ( N = 118).

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Objective: Determine anxiety trajectories and predictors up to 10 years posttraumatic brain injury (TBI).

Design: Prospective longitudinal, observational study.

Setting: Inpatient rehabilitation centers.

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Persevering with home rehabilitation exercise is a struggle for millions of people in the US each year. A key factor that may influence motivation to engage with rehabilitation exercise is the challenge level of the assigned exercises, but this hypothesis is currently supported only by subjective, self-report. Here, we studied the relationship between challenge level and perseverance using long-term, self-determined exercise patterns of a large number of individuals ( = 2,581) engaging in home rehabilitation with a sensor-based exercise system without formal supervision.

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Objective: In this article, we describe the development and preliminary testing of RehaBot-a chatbot that users communicate with via text messaging designed to augment behavioral activation (BA) treatment of reducing depression and increasing participation in individuals with moderate to severe traumatic brain injury (TBI).

Setting: Outpatient brain injury rehabilitation facility.

Participants: Outpatient brain injury clinicians and individuals with moderate to severe TBI.

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Objective: Personal beliefs about memory ability, which comprise memory self-efficacy (MSE), can influence memory performance in healthy older adults. Self-efficacy theory also predicts that MSE biases self-perceptions of functioning more globally, potentially impacting daily activity beyond cognitive performance. People with traumatic brain injury (PwTBI) frequently report debilitating memory problems long after acute recovery, but little is known about how MSE affects health outcomes in this population.

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Objective: To examine the relationship between depression and cognition, genetic risk, and hippocampal differences in a sample of older adults with a history of traumatic brain injury (TBI).

Method: Participants were 85 males and 35 females (91 Caucasian, 29 African-American) with a mean age of 65.04 (±8.

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Many youths participate in sports, and it is of interest to understand the impact of youth sports participation on later-life outcomes. However, prospective studies take a long time to complete and retrospective studies may be more practical and time-efficient to address some questions. We pilot a retrospective survey of youth sports participation and examine agreement between respondent's self-reported participation with high school records in a sample of 84 adults who graduated from high school between 1948 and 2018.

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