Publications by authors named "Amanda Leigh Garrett"
Health Expect
August 2023
Article Synopsis
- Technological advances haven't fully helped everyone access genomic medicine, especially for those with rare diseases like EDS and HSD.!
-
- Patients and caregivers face many difficulties and often share their experiences in online health communities, which are helpful for support and information.!
-
- This study used social media posts to discover that social and personal barriers are the main reasons preventing easier access to genomic medicine for those with EDS and HSD.!
