Publications by authors named "Amanda Lawrie-Jones"
Article Synopsis
- A study compared fatigue levels in a large group of people with systemic sclerosis (SSc) to typical fatigue levels in the general population, finding that SSc patients experienced significantly more fatigue.
- Participants included 2,385 individuals, with a majority being female and averaging around 55 years old, and it was noted that 18% reported mild fatigue, 27% moderate fatigue, and 8% severe fatigue.
- Factors such as age, gender, marital status, fatigue-related lifestyle choices (like smoking and BMI), and specific disease features (like gastrointestinal issues and joint problems) were all linked to higher fatigue scores in SSc patients.
Changes in work and adequacy of financial resources during COVID-19 among people with systemic sclerosis: A Scleroderma Patient-centered Intervention Network study.
J Scleroderma Relat Disord
October 2024
Article Synopsis
- The study examined changes in work status, financial adequacy, and preferences for remote versus in-office work among individuals with systemic sclerosis during the COVID-19 pandemic.
- Conducted with 298 participants, findings revealed that most people's work status and financial well-being remained stable from April 2020 to August 2022, with only a few changes in employment.
- Participants preferred flexible work arrangements, but most were required to work in a fixed, in-person setting, suggesting a need for more adaptable workplace policies to accommodate their conditions.
The association of outdoor temperature and self-reported Raynaud's phenomenon severity among people with systemic sclerosis: a Scleroderma Patient-centered Intervention Network Cohort study.
Lancet Rheumatol
October 2024
Background: Raynaud's phenomenon is the earliest and most common systemic sclerosis manifestation. Episodes can be triggered by cold exposure and ambient temperature changes. Small studies have found that Raynaud's phenomenon outcomes were associated with season.
View Article and Find Full Text PDFMinimal Detectable Changes of the Health Assessment Questionnaire-Disability Index, Patient-Reported Outcomes Measurement Information System-29 Profile Version 2.0 Domains, and Patient Health Questionnaire-8 in People With Systemic Sclerosis: A Scleroderma Patient-Centered Intervention Network Cohort Cross-Sectional Study.
Arthritis Care Res (Hoboken)
November 2024
Objective: Systemic sclerosis (SSc) is a rare, chronic autoimmune disorder associated with disability, diminished physical function, fatigue, pain, and mental health concerns. We assessed minimal detectable changes (MDCs) of the Health Assessment Questionnaire-Disability Index (HAQ-DI), Patient-Reported Outcomes Measurement Information System-29 Profile version 2.0 (PROMIS-29v2.
View Article and Find Full Text PDFThe association of resilience and positive mental health in systemic sclerosis: A Scleroderma Patient-centered Intervention Network (SPIN) cohort cross-sectional study.
J Psychosom Res
April 2024
Objective: A previous study using Scleroderma Patient-centered Intervention Network (SPIN) Cohort data identified five classes of people with systemic sclerosis (also known as scleroderma) based on patient-reported somatic (fatigue, pain, sleep) and mental health (anxiety, depression) symptoms and compared indicators of disease severity between classes. Across four classes ("low", "normal", "high", "very high"), there were progressively worse somatic and mental health outcomes and greater disease severity. The fifth ("high/low") class, however, was characterized by high disease severity, fatigue, pain, and sleep but low mental health symptoms.
View Article and Find Full Text PDFBackground: Many individuals with systemic sclerosis (SSc) are at heightened risk for COVID-19 related morbidity and isolation due to interstitial lung disease, frailty, and immunosuppressant use. Minimal research has explored loneliness predictors in individuals with chronic illnesses during COVID-19. This study evaluated moderators of loneliness trajectories in individuals with SSc during COVID-19.
View Article and Find Full Text PDFValidity, Reliability, and Differential Item Functioning of English and French Versions of the 10-Item Connor-Davidson Resilience Scale in Systemic Sclerosis: A Scleroderma Patient-Centered Intervention Network Cohort Study.
Arthritis Care Res (Hoboken)
November 2023
Objective: Some individuals with systemic sclerosis (SSc) report positive mental health, despite severe disease manifestations, which may be associated with resilience, but no resilience measure has been validated in SSc. This study was undertaken to assess the validity, reliability, and differential item functioning (DIF) between English- and French-language versions of the 10-item Connor-Davidson Resilience Scale (CD-RISC-10) in SSc.
Methods: Eligible participants were enrolled in the Scleroderma Patient-centered Intervention Network Cohort and completed the CD-RISC-10 between August 2022 and January 2023.