Publications by Alexandra Ilacqua

Publications by authors named "Alexandra Ilacqua"

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Alzheimer's disease development in adults with Down syndrome: Caregivers' perspectives.

Alexandra Ilacqua Jason Benedict Abigail Shoben Brian G Skotko Theodora Matthews

Am J Med Genet A

January 2020

Research about Alzheimer's disease (AD) in individuals with Down syndrome (DS) has predominantly focused on the underlying genetics and neuropathology. Few studies have addressed how AD risk impacts caregivers of adults with DS. This study aimed to explore the perceived impact of AD development in adults with DS on caregivers by assessing caregiver knowledge, concerns, effect on personal life, and resource utilization via a 40-question (maximum) online survey.

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