Publications by authors named "Aletta Boerkoel"

Background: For children and adolescents with chronic inflammatory bowel disease (IBD), treatment that is not in adequate conformity with the guidelines can adversely affect both the course of disease and the patients' development. The targeted use of digital patient registries may improve real-life adherence to the recommendations of evidence-based guidelines.

Methods: In a cluster-randomized, controlled trial (DRKS00015505), treatment providers for the intervention group (IG) documented the treatment of children and adolescents with IBD in the CEDATA-GPGE patient registry; they received automated feedback on the data they entered and on potential deviations of the documented treatment from recommendations contained in the guidelines (care deficits).

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Article Synopsis
  • Paediatric inflammatory bowel disease (PIBD) care is complex and requires a multidisciplinary approach, including pediatric gastroenterologists, nutritional, and psychological services, yet there's a gap between recommended and actual care experienced by patients.
  • A study used a standardized questionnaire to assess healthcare service utilization and the influence of various factors (socio-demographic, geographic, and disease-related) on this usage among PIBD patients and their parents.
  • Results showed that while most patients and parents rely on their pediatric gastroenterologist as the main contact for care, many also seek additional services like nutritional counseling and psychological support, though a significant percentage (32%) reported not using any additional services.
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Purpose: With the rising relevance of person-centred care, initiatives towards user-led decision making and designing of care services have become more frequent. This designing of care services can be done in partnership, but it is unclear how. The aim of this scoping review was to identify for mental health services, what user-provider partnerships are, how they arise in practice and what can facilitate or hinder them.

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