COVID-19 in pediatric palliative care patients: Multicenter, retrospective cohort study.

Background: Studies have shown the risk factors for COVID-19 severity in children, including comorbidities, but information on the infection course in children with life-limiting conditions is sparse.

Aim: To describe the effect of COVID-19 on pediatric patients receiving palliative care due to life-limiting conditions.

Design: We conducted retrospective cohort study.

Perinatal palliative care for family with prenatal diagnosis of Matthew-Wood syndrome.

Matthew-Wood syndrome (MWS) is a rare autosomal recessive disorder caused by pathogenic variants of the STRA6 gene. Several studies in the available literature comprise patients with pathogenic variants of gene STRA6 with various phenotypic expressions: from lethal forms of MWS to non-lethal anophthalmia. These reports mainly describe new pathogenic variants and phenotypic expression but do not describe medical or paramedical care for the affected families.

Palliative sedation at home for terminally ill children with cancer.

Context: The presence of symptoms that are difficult to control always requires adjustment of treatment, and palliative sedation (PS) should be considered.

Objectives: We analyzed our experience in conducting PS at home for terminally ill children with cancer during a seven-year period.

Methods: We performed a retrospective analysis of medical records of children with cancer treated at home between the years 2005 and 2011.

The impact of pediatric palliative care education on medical students' knowledge and attitudes.

Purpose: Most undergraduate palliative care curricula omit pediatric palliative care (PPC) issues. Aim of the study was to evaluate the pilot education programme.

Methods: All 391 students of Faculty of Medicine (FM) and 59 students of Division of Nursing (DN) were included in anonymous questionnaire study.

Perinatal palliative care: barriers and attitudes of neonatologists and nurses in Poland.

Objective: To identify barriers and personnel attitudes towards realization of palliative care principles in neonatological units.

Study Design: An anonymous questionnaire was posted to all heads of departments and head nurses of all the 27 neonatological units in the Lodz area.

Results: We received 46 (85%) questionnaires.

Who receives home-based perinatal palliative care: experience from Poland.

Context: The current literature suggests that perinatal palliative care (PPC) programs should be comprehensive, initiated early, and integrative. So far there have been very few publications on the subject of home-based PC of newborns and neonates. Most publications focus on hospital-based care, mainly in the neonatal intensive care units.

Pediatric palliative care education for medical students: development and evaluation of a pilot program.

Unlabelled: In Poland, medical curricula cover palliative care for adults, not for children. This paper evaluates feedback of students who participated in a pilot pediatric palliative care education program.

Method: An anonymous questionnaire was designed for the students; they were asked to assess each aspect of the program on a scale of 0 to 6 (0 denoted complete dissatisfaction; 6, complete satisfaction).

End of life care for patients with cystic fibrosis.

Palliative care is an approach that improves quality of life for patients and their families facing problems associated with a life-threatening illness. Care planning is particularly important in CF, where predicting a time of death is extremely difficult. The patient and family should receive realistic information about health status and further options of care.