Children with Cerebral Palsy and Their Parents Have Different Experiences of Pain Management: A Qualitative Study.

: The aim of this study is to explore and compare experiences of pain management strategies for children with CP from the perspectives of children themselves and their parents. : A secondary inductive analysis of previously collected qualitative data was performed. Fourteen children with CP and one parent of each child were interviewed separately about the management of the child's pain.

'All for the well-being of the infant': nurses' perceptions of preterm infants' eye examinations: a phenomenographic study.

Background: Preterm infants are at risk of complications due to their prematurity and Retinopathy of Prematurity (ROP) is one of them. To discover and treat ROP the preterm infants regularly undergo eye examinations. Nurses are responsible for the infants' care during this painful and stressful procedure.

Experiences of living with funnel chest prior to corrective surgery: An interview study.

Objectives: Pectus excavatum, or funnel chest, causes both physical and psychosocial issues, affecting health-related quality of life. However, the literature on how funnel chest affects daily living prior to corrective surgery is sparse. Therefore, the study aimed to describe the experiences of living with funnel chest prior to correctional surgery.

Adaptation, Translation, and Validation of a Patient-Reported Experience Measure for Children and Young People for the Canadian Context.

Background: Patient-reported experience measures (PREMs) evaluate children's and young people's (CYP) perceptions of care. An important PREM developed with and for children was created in London, UK. Given the absence of similar North American instruments, we aimed to adapt, translate, and linguistically validate this instrument for use in a Canadian pediatric outpatient setting.

Fear, coping and support- from the perspective of children aged 10-17-year old having acute lymphoblastic leukemia.

Purpose: To describe experiences of fear, coping, and support in 10-17-year-old children under treatment for acute lymphoblastic leukaemia (ALL).

Methods: A longitudinal descriptive qualitative design was adopted. Ten children participated in one to three interviews each (24 interviews in all).

"Pain is one piece of a complex jigsaw puzzle" - experiences of raising a child with cerebral palsy who has pain.

To explore experiences of parenting a child with CP and pain. Fourteen mothers and one father of children (9-16) with CP were included. All children had pain regularly, but the frequency and intensity of their pain experiences varied.

Translation, cultural adaptation and validation of a patient-reported experience measure for children.

Background: There is no national, validated, generic patient-reported experience measure (PREM) for children under 15 years of age in Sweden. A recent cross-sectional study found no consensus in how children's voices are heard in paediatric health care, as well as a lack of validated questionnaires.

Aim: The aim of this study is to translate, adapt and validate the six versions of the Children's and Young People's PREM for use in a Swedish health care context.

"I have to obey my pain" - children's experiences of pain burden in cerebral palsy.

Purpose: To explore pain experiences of children with cerebral palsy, and how it influences their everyday life.

Method: Fourteen children with CP between eight and seventeen years old were included, using a purposeful sampling strategy. They had different experiences of pain, and different degrees of physical and cognitive impairments.

Interventions for adults with deafblindness - an integrative review.

Purpose: To compile the current research on interventions for rehabilitation aimed at adults (aged 18-65 years) with deafblindness.

Materials And Methods: A comprehensive search was conducted in eight databases. An additional manual search was also carried out.

Public health nurses' experiences working with children who are next of kin: a qualitative study.

Background: There are a substantial number of children who are the next of kin of parents suffering from illness or substance abuse. These children can experience emotional and behavioral problems and may need support from professionals. In Norway, the specialist health service in hospitals is required to have a designated practitioner in each department to ensure support for and follow up of children who are next of kin; however, this is not regulated by law in the health care in the municipalities.

Interventions for children with deafblindness-An integrative review.

Background: Deafblindness is a rare condition, and its prevalence has been reported to be approximately 1 in 27 000 new-borns worldwide. For individuals with deafblindness, lifelong interventions and support are needed to be able to develop communication, be active and preserve a good quality of life. Because little is known about what kind of support and interventions can be offered to children with deafblindness, the aim was to summarize and disseminate research findings regarding this topic.

A lifelong struggle for a lighter tomorrow: A qualitative study on experiences of obesity in primary healthcare patients.

Aim: To describe experiences of living with obesity before the start of a group-based lifestyle intervention.

Background: Obesity is a chronic disease that affects a person's physical and psychological health. Increased knowledge of experiences of living with obesity is required.

Pain burden in children with cerebral palsy (CPPain) survey: Study protocol.

Pain is a significant health concern for children living with cerebral palsy (CP). There are no population-level or large-scale multi-national datasets using common measures characterizing pain experience and interference (ie, pain burden) and management practices for children with CP. The aim of the CPPain survey is to generate a comprehensive understanding of pain burden and current management of pain to change clinical practice in CP.

Living an ordinary life - yet not: the everyday life of children and adolescents living with a parent with deafblindness.

Introduction: The family life of people living with one family member with deafblindness has been sparsely described.

Purpose: The aim of the study was to explore how children experience their everyday family life when having a parent with deafblindness.

Methods: An explorative study in which data have been collected by qualitative interviews of children.

Experiences of rehabilitation services from the perspective of older adults with dual sensory loss - a qualitative study.

Purpose: To describe the rehabilitation service experiences of older adults with dual sensory loss (DSL).

Methods: Twenty older adults aged ≥65 years with DSL participated in semistructured interviews. Inductive qualitative content analysis was conducted.

Health-related quality of life after Nuss procedure for pectus excavatum: a cross-sectional study.

Objectives: Pectus excavatum (PE) can cause both physical and psychosocial symptoms and affect patients' health-related quality of life. Previous international studies have shown that the Nuss procedure increases both self-esteem and body image. The aim of the study was to evaluate the health-related quality of life in patients who have undergone the Nuss procedure for PE.

How paediatric departments in Sweden facilitate giving children a voice on their experiences of healthcare: A cross-sectional study.

Background: In January 2020, the United Nations Convention on the Rights of the Child was incorporated into Swedish law. According to Swedish regulations, patients are to be given the opportunity to participate in quality improvement. Sometimes, the patients are children who have the right to be heard on matters concerning them, such as their experience of a hospital visit.

Community-based support for children who are next-of-kin for a parent experiencing illness or disability - a scoping review.

Introduction: Children who are next-of-kin, for a parent who experience illness or disability, need support. In Norway, guidelines, routines and structured approaches in the community health services are lacking regarding involving children in the care of a parent and for services when supporting children as next-of-kin. Additionally, no existing international review has focused on support from community health and social services for children who are next-of-kin to a parent regardless of the specific illness or disability.

The professional relationship forms the base: Swedish child health care nurses' experiences of encountering mothers exposed to intimate partner violence.

Purpose: This study aimed to explore child health care nurses' clinical experiences from encounters with mothers exposed to intimate partner violence (IPV), as little research has explored this topic.

Method: Nine child health care nurses from two Swedish regions were interviewed. The interviews were analysed using thematic analysis.

Young children's experiences of support when fearful during treatment for acute lymphoblastic leukaemia-A longitudinal interview study.

Aim And Objectives: To describe young children's experiences of valuable support in managing their fears about treatment for acute lymphoblastic leukaemia. The focus was specifically on support from parents and healthcare professionals.

Design: The study had a qualitative descriptive longitudinal design.

Translation and psychometric evaluation of the Swedish versions of the Nuss Questionnaire modified for Adults and the Single Step Questionnaire.

Background: Pectus excavatum (PE) is the most common congenital chest wall deformity. Most individuals with PE suffer from psychosocial problems, with low self-esteem and poor body image. Correctional surgery for PE is available, the most widely used is the Nuss procedure.

"I can manage the challenge" - a qualitative study describing experiences of living with balance limitations after first-ever stroke.

: To describe experiences of living with balance limitations after first-ever stroke. : This study has a qualitative design, comprising interviews with 19 persons with first-ever stroke, ten women and nine men. Their mean age was 77 years and the mean time since stroke was 15 months.

The lived experiences of work and health of people living with deaf-blindness due to Usher syndrome type 2.

: This study aimed to explore lived experiences with working life from the perspective of people with deafblindness due to Usher syndrome type 2 (USH2). : A limited number of studies have explored working life of people with Usher syndrome. One study of individuals with USH2 showed that work active reported significantly better psychological health compared to non-working individuals.

Prevalence, diagnoses and rehabilitation services related to severe dual sensory loss (DSL) in older persons: a cross-sectional study based on medical records.

Objective: To estimate the prevalence of severe dual sensory loss (DSL) among older persons (aged ≥65 years) in the Swedish population, to identify the diagnoses that cause severe DSL, and to identify rehabilitation services in which the participants have been involved.

Design: A cross-sectional design was applied. Medical records from Audiological, Low Vision, and Vision clinics from two Swedish counties were used.