Publications by authors named "Agerskov H"
Aim: To investigate dermatology and allergology nurses' experiences of relocation from an outpatient clinic to a newly established COVID-19 infectious disease ward.
Design: A phenomenological-hermeneutical approach was applied.
Methods: Three focus groups with nurses were conducted from June to August 2020.
Aim: To achieve an in-depth understanding of the challenges associated with diabetes management when having both schizophrenia and type 2 diabetes, while also identifying the needs for improved diabetes self-care.
Design: The study employed a qualitative explorative design utilizing a phenomenological-hermeneutic inspired approach, involving field observations and individual semistructured interviews.
Methods: Data were collected during 2020-2021 through 17 field observations of outpatient consultations and 13 individual semistructured interviews.
Background: Research in Denmark indicates that approximately 30% of people with confirmed COVID-19 infection experience at least one physical symptom 6-12 months after the acute infection. The lived experiences of undergoing prolonged recovery processes and how these processes unfold need further attention.
Aim: To contribute in-depth knowledge about recovery, as experienced over time by people living with the post COVID-19 condition.
Background: Patients with chronic kidney disease and their family members experience a number of lifestyle changes caused by the illness. The value of advance care planning includes understanding health status and options for future care, communication between close family members, and identification of wishes and preferences for care and treatment in relation to family and everyday life.
Objective: Explore how patients with chronic kidney disease and their families experience everyday life and how they experience having to make choices about treatment.
Aim: To develop an advance care planning intervention based on the needs of patients with chronic kidney disease, families and healthcare professionals.
Background: Patients with chronic kidney disease and their families request early advance care planning that continues throughout their illness trajectory. Healthcare professionals experience barriers to initiating advance care planning.
Background: The experience of loss and grief in patients' lives with life-long treatment in haemodialysis, and in their families' lives is a major cause of mental health problems. In practice, nurses often describe a lack of time and limited knowledge of how to provide nursing care in situations of loss and grief, thus finding out from nurses' perspectives of what competencies they need to provide care would be useful for the development of nursing practice.
Objectives: To develop knowledge in a nursing perspective of competencies to provide care for patients and their families, who experience grief linked to loss due to kidney failure, haemodialysis and/or death.
Objectives: The Family Health Scale is a new instrument for evaluating family health. The instrument is reported as valid and reliable in investigating family health among different types of adult family members. This study aimed to translate the Family Health Scale into Danish and investigate its validity and reliability in families with a family member affected by chronic or serious illness.
View Article and Find Full Text PDFIntroduction: Patients with chronic kidney disease and their families strongly request advance care planning. They want it to start early-before treatment decisions are made-and to be an ongoing process during their illness trajectory. Previous international studies show that health care professionals find there to be significant barriers that impact the extent of involvement in advance care planning.
View Article and Find Full Text PDFArticle Synopsis
- Patients are very involved in health research, but usually researchers decide what happens. In the Kidney Connect project, patients took charge and led the work!
- The article talks about how patients led the project, what worked well, and what didn’t go as planned compared to research led by scientists!
- It shows that while patient-led projects might have some issues, they can still get good results, and it’s better when both patients and researchers work together!
Background: Paediatric kidney transplantation is often the best choice of treatment for kidney failure with replacement therapy and represents an important change in the child's well-being. There are, however, still a number of challenges in addition to the parental role. The magnitude of intensive parental caregiving and support required by children with a kidney transplant could be disruptive to family relationships and dynamics.
View Article and Find Full Text PDFObjectives: To explore parents' experiences of using an outdoor playground during hospitalization with their child with epilepsy.
Method: The study is based on a qualitative exploratory design. Semi-structured individual interviews were conducted with 10 parents with a child with epilepsy (6-11 years).
Background: Kidney transplantation in children shows excellent long-term outcomes. However, parents feel responsible for ensuring that their child adheres to complex medical interventions. The dual role - as both parent and medical caregiver - gives rise to fatigue, stress, and emotional pain.
View Article and Find Full Text PDFIntroduction: Advance care planning is a process that supports adults of any age and stage of illness in understanding and sharing their values, life goals, and preferences regarding medical care. Chronic kidney disease is a progressive and lifelong disease. Close relatives often represent patients' most important support.
View Article and Find Full Text PDFBackground: Teledermatology has the potential to help deliver health care by transforming the relationship between patients and health care professionals (HCPs), shifting the power of consultation so that patients can become more informed, assertive, and involved in their care. Mobile health (mHealth) is a promising and reliable tool for the long-term management of patients with psoriasis on systemic treatment. In an attempt to facilitate a more patient-centered approach in clinical practice, we designed and developed an mHealth solution to support patients with self-management and empowerment.
View Article and Find Full Text PDFBackground: Chronic kidney disease in children has an impact on all family members. Healthy siblings, in particular, may experience negative psychological and emotional symptoms. Little attention has been paid to how they experience everyday family life and the impact of their sibling's disease.
View Article and Find Full Text PDFBackground: In Denmark, patients with psoriasis undergoing biological treatment have regular follow-ups, typically every 3 months. This may pose a challenge for patients who live far away from the hospital. Mobile health (mHealth) is a promising and reliable tool for the long-term management of patients with psoriasis undergoing biological treatment because the disease course can be properly monitored.
View Article and Find Full Text PDFAim: To investigate psoriasis patients' and healthcare professionals' experiences and perspectives of follow-up consultations.
Design: A qualitative study with a phenomenological-hermeneutic approach.
Method: Participant observations of consultations and semi-structured interviews were conducted with patients receiving biological treatment, together with two focus groups with healthcare professionals, from June 2018-January 2019.
Introduction: Patients receiving immunosuppressive therapy have an increased risk of developing verrucae vulgaris (warts). They often suffer from dissemination of numerous warts, complicated by low treatment response and long-term treatment. How patients experience these challenges is not well characterized.
View Article and Find Full Text PDFAim: To investigate the experiences and perspectives of everyday life among patients on lifelong haemodialysis and their partners.
Design: A qualitative exploratory study with a phenomenological-hermeneutic approach.
Method: Data were collected through individual interviews.
Aims And Objectives: To investigate attitudes towards family involvement in care among a broad sample of Danish nurses from all sectors and healthcare settings.
Background: Evidence suggests that nurses hold both supportive and less supportive attitudes about involvement of family members in the care of patients, and the existing findings are limited to specific healthcare contexts.
Design: A cross-sectional study adhering to the Strengthening the Reporting of Observational Studies in Epidemiology for reporting observational studies.
Background: Psoriasis has a large negative impact on quality of life and is associated with both depression and anxiety. The introduction of biologics has improved treatment outcomes, but the ways in which patients perceive these improvements are not well characterized.
Objectives: To investigate the everyday life experiences of patients with psoriasis receiving biological treatment in order to gain an understanding of their needs and to improve the quality of care.
Article Synopsis
- The study aimed to understand the experiences of patients and healthcare professionals using a telehealth solution designed for follow-up care after kidney transplantation.
- Participants included 16 patients and 20 healthcare professionals, who were interviewed about the app's usability, and three main themes were identified: challenges with training, improved patient reflection and collaboration, and enhanced patient involvement in consultations.
- Overall, the findings indicated that both patients and healthcare professionals valued the app for its ease of use and effectiveness in facilitating communication and enhancing the follow-up process post-transplantation.
Aim And Objectives: To explore experiences and the significance of relationships and dynamics among family members living with a child with severe kidney disease.
Background: Chronic kidney disease (CKD) in children is often incurable, leading to irreversible kidney damage. End-stage kidney failure in a child impacts daily life and routines, requiring significant social adaptation for all family members.
Aims And Objectives: To investigate patients' existential experiences in everyday life prior to a kidney transplantation with a living donor.
Background: Kidney transplantation is a well-established treatment for patients with end-stage kidney disease. The prevalence of patients living with end-stage renal disease is increasing.