Publications by authors named "A D Storms"
Study protocol of the HessenKohorte2042: a prospective, longitudinal cohort study characterising quality of life in people with Parkinson's disease and their caregivers using a bio-psycho-social approach.
BMJ Open
July 2024
Article Synopsis
- Quality of life (QoL) is crucial for monitoring therapies in Parkinson's disease patients (PwPD) and their caregivers, as both can experience a decline in QoL due to the disease’s varied symptoms and its psychosocial impact.
- A longitudinal study will track 1,000 PwPD and their caregivers over 20 years, assessing QoL through clinical data, self-reports, biospecimens, and MRI scans to better understand the factors influencing QoL.
- The findings aim to enhance diagnostics, prognostics, and therapy adjustments, with results slated for publication in peer-reviewed journals to ensure broad dissemination and impact.
End-stage liver disease (ESLD) patients carry heavy symptom burdens and risk receiving aggressive and sometimes unwanted care at end of life. Palliative care (PC), which aims to alleviate symptoms and facilitate goal-concordant care in serious illness, may offer substantial benefits for ESLD patients but is not widely provided. To assess the impact of PC integrated within hepatology (PCIH) services on health care utilization, advance care planning (ACP), and hospice enrollment.
View Article and Find Full Text PDFLack of knowledge of palliative care has been identified as a primary barrier to access to care, with a recent survey reporting that Hispanics have the lowest rate of palliative care knowledge compared with other racial/ethnic groups. The purpose of this pilot study was to determine if there were trends toward improved palliative care knowledge after viewing four-minute video of a palliative care patient. We conducted a pre- and posttest pilot study among 50 Spanish-speaking, hospitalized Hispanic patients 40 years old and older in a large public hospital.
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