Publications by authors named "A A Sluiter"
Background: The symptoms, comorbidities and treatment burden associated with chronic kidney disease (CKD) can be debilitating and limit life participation in patients with CKD not requiring kidney replacement therapy (KRT). The aim of this study was to identify the characteristics, content and psychometric properties of patient-reported outcome measures (PROMs) used to assess life participation in patients with CKD.
Methods: We searched MEDLINE, Embase, PsycINFO and CINAHL from database inception to February 2023 for all studies that reported life participation in patients with CKD (stages 1-5 not requiring kidney replacement therapy).
Article Synopsis
- * Analyzing 35 qualitative studies from 12 countries, four main themes emerged: the negative impacts of illness on body image and social interactions, challenges in maintaining peer relationships, experiences of social exclusion, and the importance of social support from friends and family.
- * The findings suggest that chronic health issues hinder social participation and friendships, and there is a need for supportive interventions that foster social connections and inclusivity in school and community settings.
Key Points: Loneliness and social isolation are increasingly recognized as global public health issues; however, little is known about the patient and caregiver experience in CKD. We used qualitative data to explore the experiences of loneliness and social isolation from the perspective of patients and caregivers.
Background: Many patients with CKD experience loneliness and social isolation, which are associated with a higher risk of mortality, morbidity, and poor mental health.
Social functioning is a key aspect of daily life and is important to patients living with chronic kidney disease (CKD) and their caregivers. Many patients with CKD experience debilitating symptoms and treatment burden that can diminish their social functioning and thereby overall social health, which is the aspect of a person's well-being relating to their interactions and connections with others. In patients with CKD, symptoms (e.
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- * A national workshop with diverse stakeholders identified six key themes vital for enhancing inclusivity in CKD research: building trust, fostering community, balancing expectations, providing support, making research accessible, and adapting to individual needs.
- * Implementing strategies based on these themes can lead to more diverse and equitable patient and caregiver participation in CKD research, ultimately improving its relevance and impact.